Make happy those who are near and those who are far will come - Chinese proverb
Be always at war with your vices, at peace with your neighbors, and let each new year find you a better man. ~ Benjamin Franklin
There are only two ways to live your life. One is as though nothing is a miracle. The other is as if everything is a miracle - Albert Einstein
The journey of a 1000 miles starts with a single step
Sometimes in the middle of an ordinary life, love gives you a fairy tale
Where there is great love, there are always miracles - Willa Cather
The Difficult we can do immediately, the impossible takes a little longer
Doing what you like is freedom. Liking what you do is happiness
There are two lasting bequests we can give our children. One is roots. The other is wings.
Be the change you want to see in the world
I am only one, But still I am one. I cannot do everything, but still I can do something; and because I cannot do everything, I will not refuse to do the something that I can do. Edward Everett Hale
Everything has beauty, but not everyone sees it
A well fed, well rested child is a happy child!
Despite our differences, we sink or swim together
Life may not be the party we expected, but while we are here, we might as well dance
"Challenges are simply opportunities with the wrappings still on"
This will be my last post until after Thanksgiving. I probably won't return until the Tuesday after Thanksgiving because we have a busy week and family to visit, etc. So I won't have much time for blogging I am afraid.
Mat and I took the kids to a local state park today to take our annual Christmas photos of them. It went pretty well. We took 125 pictures and were able to pick our 4 to use for this year. It is hard to get three kids to cooperate for a pictures - especially outside. But it is done.
I am going to share some pictures on this blog today from our photo shoot, but I will not be sharing the final ones. Those I will reserve for family and those who receive our annual Christmas card. Today in church, a young man sung a song. It talked about being thankful for what we have even with so much that is sad or hurtful in the world. At this time of year, we remember all that our family is thankful for.
This summer, we were given news about Finley that made us sad and angry. But in the midst of that, we were thankful for many things about the situation. We were thankful that she still has her sight now. We were thankful that is was not life threatening. We were thankful that research is making such amazing strides that we may see a cure in the very near future.
We are thankful that all of our children are healthy. There are so many blogs I read where the families are dealing with serious illnesses with their children.
We are thankful that we added two new members to our extended family this year. Well - almost two! Our nephew who was born in June, and I have a niece due to be born in just a few weeks. We love that our family is growing by leaps and bounds and that each Christmas will be filled with more joy and laughter of all of the kids.
We are thankful for our jobs. In an economy that has still not improved, we are lucky to both be working full time in areas we enjoy.
We are thankful for our home. We take it for granted how lucky we are that we have a warm, beautiful home to come to after work each day.
I could go on forever. We take everyday things for granted. We expect our home, our jobs, our health to be there. We get upset at the little things that happen. The stress of the holidays sometimes outweighs what is really important.
Our pastor talked this morning about how Christmas has become what we as a society has made it, and the real meaning is lost. She's right. We get caught up in finding the perfect present or making the perfect meal, and forget that all we really need is spending time with each other.
We have been really good at eating dinner together as a family. It gives us a chance to talk about our days. It shows our kids that family meal time and spending time together is a top priority for us.
As the kids get older, I hope to instill family game night as well. We love playing games together, and it will be another time we can all be together doing an activity.
Time passes quickly. The baby stage of my kids is over. We will never again have a little baby in our house. It is sad in a lot of ways. But I am thankful for each new stage that my kids are in. I am thankful I am watching them grow into wonderful little people and decent human beings.
This is the first year in 12 years that Mat and I will be having Thanksgiving with family. We have always lived too far away from family to make a trip to see them over such a short holiday.
But this year, we are anxious to spend this holiday with our family and show them how thankful we are for them.
Happy Thanksgiving to all of you! I will be back to blogging after the holiday weekend! I can't believe by then it will be December!
I have been in the quilting zone all day and forgot about blogging!
I will blog tomorrow. We plan on taking the kids outside to take their Christmas pictures, so I will post some of those tomorrow night!
I will leave you with one funny thing Finley said.
Scene: The VTs and I are riding in the car.
Finley: mommy, I want girl cheese for dinner (she really thinks it is girl cheese) Me: that sounds fine. Cainan: I want that too! Finley: you can't have that Cainan Cainan: yes I can Finley: no you can't Cainan. It is GIRL cheese. You are a boy. You would have to eat boy cheese.
Cainan: (laughs). boy cheese? Finley: yes Cainan. Only girls can have girl cheese. Me: Finley - it is GRILLED cheese. Finley: I know. Girl cheese. Me: forget it.
So, I thought leaving Florida meant leaving the rudest people on earth behind. Today I was proved I was wrong about that.
At 8:30 this morning, while I was just getting settled at work, The billing department at Boston Children's decided to start my day off all wrong. We had submitted a complaint that we felt we were overbilled for Finley's genetic blood draw (by A LOT - several thousand), and at first, the people I delt with a few weeks ago were wonderful. Very understanding and also feeling that a mistake was made. I sent in the required letter and paperwork to try and resolve the problem.
But today - a VERY rude man called me up to basically say I was a moron for second guessing their charges. I tried to explain to him that 1) we know what we should have been charged and 2) we didn't mind paying, but we felt it was in need of more explanation. I got no where with this man. He was awful. He wouldn't let me talk, he kept making really dumb remarks, and he had poor grammar. Why in the world he was in charge of calling people, I have no idea.
I was pretty rattled when the phone call ended, so I took his name, and called Mat. I am not easily rattled by stupid people, but this guy caught me off guard. So my saint of a husband took care of it for me. Not only did he talk to this guy and really challenge him, he talked to his supervisor and patient relations. So, in the end, I was feeling better.
But - if you use Boston Children's for anything, stay FAR, FAR away from their laboratory. They are going to screw it up. Get your blood drawn somewhere else.
Moving on........
Today was met with a large headache that stayed with me all day after that phone call. So, I didn't attend the monthly PTO meeting tonight. I was disappointed, but my headache won in the end. This weekend flew by. Sunday we went to church, and then in the afternoon, Arlington and I went dress shopping for her annual Christmas dress. This year I took her along to choose. She narrowed down her choices based on color, and how far the dress went out when she spun in a circle. In the end she probably tried on 30 dresses. And she was very dizzy. But we had a great time. We spent several hours at the mall for her to pick the first dress she tried on.
This is only the beginning of that charade.
She also chose a dress that came with a matching doll dress for Bargain girl. She tried it on her tonight while she was modeling to see how they looked together.
We also got Finley's dress while we were shopping this weekend.
She wanted to model her cute self.
I had a hard time getting her to stand still long enough for a good picture. Christmas pictures this you should be interesting.
I didn't take any pictures of Cainan in his outfit. It is different with boys. His is a shirt, pants, and sweater are just cute, but nothing fancy. You can wait to see that.
Arlington and I wrapped up the book "The Magician's Elephant" and I highly recommend it. It was very good, and we both enjoyed it.
Now Mat is taking a turn reading to her at night, so she picked for them "Diary of a Wimpy Kid" book one.
I think they are both enjoying it. The humor is right up her alley.
On her own, Arlington is plugging away at books to get her to her American Girl doll. She is still doing one chapter book a week, and sometimes she fullfills that requirment in a day, and sometimes it takes the whole week - depending on her mood! This week, she finished one book in a day and is working on a second so that maybe she can finish early. Good thought.
So she is working on "The Littles" series. She and my mother-in-law Sally picked up one at the book sale a few weeks ago, and she loved it. So we went to the library and got a few more. They are cute books and a bit on the old side. She asked me at one point what "keen" meant. That says a lot about the age of the book.
The second book that caught her attention this week was "Happy Birthday Bad Kitty".
Again, humor right up her alley. She read this book last night before going to bed - she loved it.
Finley got a coloring book in the mail today from her new teacher from the school of the blind. She was pretty excited about it. Her teacher thought she might like it, and she was right. The pictures are raised, so she can feel them and that is helping her color. And it also contains the braille words for all of the pictures, so that was cool too.
She already colored in it a bit. Tomorrow her teacher will be visiting her preschool and talking to them about how Finley acts/interacts at school. Then the teacher will finish up her report and we will get a copy.
Which makes me think of that REALLY awful guy this morning. I felt like shouting at him - "our daughter is going blind. We are trying to do right by her. I don't need this." What a jerk. Maybe if he would have taken two seconds to look at the test and see what they were for, maybe he would have been a little more sympathetic.
But probably not.
Back to Sunday - after the shopping trip, we met Mat and the VT's (virtural twins- in case you forgot) at the church. Mat and I have decided to join our church, so we had to attend a new members class. We absolutely love this church and the people. They had found someone to watch our kids while we attended the class. It was fun and low key.
After the class we went to Ruby Tuesday's for dinner. Thanks Aunt Betty for the gift card - we enjoyed our dinner out!
Monday morning - Finley was not in the mood to go to school.
I wanted to take a picture of her in her cute outfit, and she felt that this pose was good enough.
She also decided her stuffed M+M needed a bed and blanket before she left for school.
Monday I met Mat at the toy store to let the VTs walk around and see what they wanted for Christmas. They were on toy overload. The wanted everything they touched, of course. But Finley found two things she wanted consistently. 1) baby doll 2) stuffed elephant. She wants a "soft baby and a walking/talking baby". This walking/talking baby is WILD. She is not cheap, either. But she stands and walks on her own. Personally, it made me think of "CHUCKY", (although this doll was cute). So I was researching the doll when I came home, and found this absolutely hilarious You Tube video I wanted to share with you.
Isn't that funny? My goodness people have too much time on their hands.
Finley also thought she wanted a "Terminator Skull" because it was a skeleton. What a weirdo.
Cainan really wants anything to do with super heroes and cars and trucks. All boy, all the time.
Although, today - when I asked Cainan again what he wanted - he said "green jello". Weirdo.
I took a picture of the "project" the students in the school have been doing for me. I have to do handwashing classes, which I have told you about before. I have each class write for me ways of keeping healthy, or have them draw pictures of being healthy. Tomorrow is my very last class (can I get a hallelujah) so I took a few pictures of my walls.
I have to tell you about Kindergarten - I have NO idea what some of the pictures are. There is also a very good chance I hung a few of them upside down. But they were so proud of themselves. I enjoy going in and teaching a few things.
So that's it. The rest of the week will be busy at home and at work, so I am looking forward to the weekend! Don't forget to leave a comment so I know you were here! I love hearing from my readers - don't hide!! Posting: 1 - go to the bottom of this post and click on the word "Comments" 2 - when the page comes up, type a message into the little box on the right. PLEASE REMEMBER TO SIGN YOUR NAME. 3- scrolls down under the box and you will see the choice "Anonymous". Pick this and click "Publish Your Comment" (big orange bar) 4- your comment will appear on the left.
If someone would have told me what Finley would be like - I would have never believed it. She is sweet, and funny, and has a personality that would knock your socks off.
But sometimes.......she is just......Finley.
Yesterday she was getting down off a stool at our bar after eating dinner. She didn't have a napkin handy, so she wiped her face on the cabinets. Just walked right by them, wiped her mouth, and kept on going. Mat and I looked at each other in disbelief.
Today in the car, she used a magazine as a kleenex.
And when I asked her what she wanted from Santa Claus this year? She said - a cookie.
She keeps us in stitches, if nothing else.
I am sorry for the lack of pictures in this post. I got a cold on Wednesday, and have been feeling under the weather ever since. So not many pictures - I am very sorry!
Thursday was Finley's hearing appointment. Her appointment was at 9am, and I figured we would be done and out of there by 10am. I had taken a half day off from work, and planned on going in during the afternoon. At 12:00pm, we were STILL at the appointment! So, needless to say, I lost the whole day.
But - the appointment went well. Finley had a hearing test first. The audiologist found that she has a large amount of wax build up. This is always the case with her. We have had her ears cleaned out by doctor's on a regular basis, and nothing seems to keep it at bay. So, she did show mild hearing loss during the first test. The audiologist was confident it was due to her large wax build up. Since she has low vision, they did a test where every time she heard the sound, she dropped a toy in a bucket. This is different than what they do for Cainan. Cainan gets a visual cue after he hears the sound, but they were pretty sure Finley wouldn't be able to locate it outside of her tunnel vision.
The only draw back to doing the test this way - it took FOREVER. Finley had a great time, and had no problems understanding the directions, but what normally takes about 15 minutes for Cainan, took almost 1 hour with her. After that was done, we went over for her appointment with the ENT. She was running really behind. We were in a Children's Hospital, so Finley had enough to entertain her. The ENT looked in her ears and concurred with the audiologist that the wax was probably causing the hearing loss. She cleaned Finley's ears out, and what came out of her ears could have made a candle! I couldn't believe it!! Poor thing. The doctor said she probably needs to have her ears cleaned out on a regular basis by herself or the pediatrician. She gave me some things to try at home (which we have used in the past), and hopefully that will help. We will be repeating the hearing test in January, and if that turns out okay, the ENT feels like she won't need to see her again for at least 1 year. Unless we feel like anything with her hearing has changed.
So check another off our list! Cardiologist - good. ENT - good. Kidneys - good. That wraps up everything the geneticist should need for our upcoming appointment in December.
Since I had a bad cold, I wasn't too sad that I missed work on Thursday. I got a chance to rest during the afternoon while Finley napped.
Friday - still feeling under the weather - but back to work. Friday night after putting the kids to bed, Mat and I did our online Christmas shopping for the kids and family. We have done this the last couple of years. We love Ama*on.com. LOVE it. I am not a big fan of tackling the mall or toy stores around this time of year, and so we try to avoid it as much as possible. So that was a great job done!
Today we went to the outlets near our house. We are taking a family picture over Thanksgiving with my brother and his family. We decided on black shirts and jeans. I thought it would be hard to find Black for the girls, but I did well with them. But Cainan? No luck! I couldn't believe it. But being at the outlets, in the rain and wind, was not fun for me. The kids had a blast - touching all of the clothes, riffling through the shoes. Cainan was a big fan of the boots in each store and would take a pair off and want to take them with him. They were pretty good, but it wasn't relaxing. We only were there about 1 hour, and that was plenty!
This afternoon Mat and I did a little more toy shopping but had to (gasp) go to the toy store. We had our wonderful new babysitter come and stay with the kids. We got to go shopping alone and actually have an adult conversation for almost 3 hours. It was great! The toy store was really crowded, and we weren't that successful. But it was nice to be out.
Tonight we brought home a catalog for the toy store, and Finley and Cainan went through it about 25,000 times. Arlington is confident in her wants, so she didn't need to look.
Cainan had a great time telling me what he doesn't have, and does have, and does want, etc.
Finley kept saying "this is small enough to fit in Santa's sleigh, right? This is too big for Santa's sleigh, right?" Finley got a pair of skeleton pajamas while we were out shopping today.
I am pretty sure they are boys, but she didn't care. Since she is really into skeletons this year, she had to have them. She couldn't wait to put them on. Then she put on a mask that her Aunt Jess sent the kids for Halloween.
This should have been her costume this year!
Tomorrow is church, a new members class at our church, and that is about it! This is our last full week of school before Thanksgiving! Yay!
Well, I tried REALLY hard to outlast everyone getting sick. We had 1/2 our school population have the flu. I sent home between 5-8 kids a day with fevers, coughs, etc. The other 4 members of my family were sick with flu or other. I TRIED. But yesterday I started to feel a little yucky. Last night I was asleep by 9!! And today - I am still achy and don't feel like doing much. But hopefully it will just stay a cold and that will be that. Stinking little germisters.
We have started to rake up all the fallen leaves in our yard. This year we decided to wait until most of them were down before getting rid of them. My parents were nice enough to buy us a leaf blower, and that helps a ton. We took the kids outside the other night when the weather was pretty nice, and started to gather up all the leaves.
The kids had a great time jumping in the gigantic leaf pile that we made.
With it getting dark so soon, we only got a small section of the job completed. I did got outside for an hour today, after the medicine kicked in, and spent an hour blowing the leaves around. I didn't get very far. Too....many.....leaves.
The "sick" population is way down at my school this week. Yesterday we were down to 18 absent. And so that is great! And I didn't send a single kid home. I hope that is the end of it, and that it doesn't come back around again.
Tomorrow Finley has a hearing appointment. Part of her LCA diagnosis "workup". She has a hearing test and then will meet with the ENT doctor afterward. I am going to this appointment. I took a 1/2 day off so that we could go. Hopefully all will be well.
Cainan had his 6 month ENT checkup on Monday. His tube looks great! The last ear infection they changed his antibiotic to get rid of it and it worked. She was pleased how it looked and we are happy he doesn't have to have surgery to put a new one in. So we will see her again in 6 months unless problems arise before then.
The kids are busy deciding what they want for Christmas. Arlington is still the only one that really gets it. Arlington is asking Santa for a scooter, walkie talkies and a watch. Finley said she wanted cookies for Christmas. What a weirdo. We haven't started any shopping yet.
I am busy finishing up two quilts. One is for my sister in law who is due to have our newest niece at the end of December. We can't wait to meet her! The other one is a Christmas present, and I won't mention who for since these people read my blog!! But I love doing them. I will take some pictures once they are done.
So that is all. Everyone have a great week and stay healthy!!
Mat and I watched this documentary the other night. If you have a young child, or a child soon to be in preschool, you need to rent this. It is pretty funny. It is a documentary about getting into a New York City preschool and what that entails. It is unreal. I don't know who I felt worse for - the preschools or the parents. These preschools are around $21,000 or MORE for a 6 hour day. (9-3). So basically, you have to spend a college tuition to send your kids there, but yet, someone really can't work. What job works from about 9:30-2:30 (considering that is how long you would be there if you had to drop off and pick up your kid?)? You could work a little, but would it REALLY put a dent into that kind of tuition?
Most families in the documentary were rich, upper East Side New Yorkers. There was one family who required financial aid, and one family that said "forget this" and put their child in a co-op preschool run by parents. Most families applied to no less than 6 schools! And even then, they may not even make the lottery. AND EVEN THEN - they might not be accepted. In most incidences they had 150 applications for 20 spots. WOW.
Now, I have to say, I am a little bit of a preschool snob. I do want my kids to have a "leg up" as the documentary stated. And Mat and I pay quite a bit for our kids to go to their current private preschool. Not $21,000 a kid. But, you know. It isn't cheap. And we thought what we pay was outrageous! And we both work. And I don't have a nanny taking care of my kids while I am home during the day. So.......we are different. Right? Although, that DOES sound kind of nice........
Anyway, the point is - a good preschool is important. To a point. I don't think that a good preschool will get my children into Harvard. Finley is going to clown school, remember? And Arlington wants to be a statue when she grows up. Or a taxi driver. (toss up). What I believe is that a good preschool will teach my children the basics, but give them social skills, and teach them sharing, and being accepting of all people. That is what a good preschool means to us. If you have a child in elementary school, you know that preschool is almost a requirement to do well. Meeting with Arlington's teacher the other day, she was telling me that this year requirements are becoming more complicated for first grade due to the upcoming Mastery Tests. So they push ahead. Kindergarten is the "new first grade" and all that blah.
We made a change in our kids preschool this year. We felt they were really in a daycare setting at their last school, and wanted them to be in a "school". Especially Cainan who does seem to have some learning issues. And he has really thrived. His classroom really pushes academics, and he has made some amazing progress. So, we feel we are getting our money worth.
But there wasn't a lottery. Or a wait list. Or pressure. We simply called them up, applied, (gave them a lot of money), and the kids went to school there. The end.
Although - I do think I should call the school and request they put in a gym. And a library. And a wood working room. And a pool.......you know - like the New York City preschools have. Don't you think I should request those? Yeah, maybe not.
You have to watch this documentary. It makes me glad I don't live in a city.
Finley did end up getting sick. I jinxed myself on Tuesday when I said she was doing fine. Wednesday morning she woke up with a fever of 101. So I stayed home with her. I gave her motrin, she laid on the couch for about 1 1/2 hours, then she was a crazy maniac the rest of the day. The fever never returned after 7:30am, and that was the end of it. So, she went back to school on Thursday. Today she has laryngitis. I am not surprised about that. That is a weak spot in the women in our family (my mom, grandma, myself included) so when we get sick, we tend to lose our voice. Hmmmmm......you know - Finley being silent is kind of nice......... Just kidding.
So, Cainan, Mat, Arlington, and Finley all have some kind of sickness. Cainan, Arlington and Mat just have lingering coughs. Arlington and Finley were the only ones that really had fevers. And me? I am still hanging in there. Maybe 12 years of pediatric nursing is starting to pay off. Nah. I am sure my time is coming. The number of kids absent in my school has been getting less and less. By Friday we were down to 41 kids absent and I only sent 1 home. So that is down from 93 on Monday. Yay!! We are on the mend. And really, those absent on Friday were over their fevers, but parents were keeping them home an extra day just to give them one more day of rest. I hope this is the end of it and another "wave" will not come through our area.
This coming week Cainan has an ENT appointment to look at his ear tube. The doctor tried a different antibiotic, and honestly, the ear infection didn't come back. So Monday she will look at the tube one more time and decide if it needs to be changed or can stay in for now.
Finley also has an ENT appointment this week. As part of her LCA diagnosis, hearing can be affected. So she is being checked. She has a hearing test first and then will meet with the doctor. If nothing else - maybe she can give me some tips to control her overwhelming large amount of ear wax. I think that is probably what is causing her hearing loss (even the genetic tests revealed she produced a lot of access ear wax) . Finley's kidney tests all came back normal. She had blood drawn and gave a sample and all is well. So that was a relief. It will just be something to continue to watch annually to make sure nothing changes. More goodness. Heart - good. Kidneys - good.
Now - if they could JUST fix her whining problem.
Today Mat and Arlington went to our church to help with annual cleaning. Since Finley is feeling under the weather, the VT's (virtual twins) and I stayed here and hung out together. I wanted to take the kids to a movie, but not much is playing right now. But again, since Finley isn't well, it is for the best.
Tonight we sat around and watched a movie together and then the kids played a little while before bed. Mat and I have plans to watch another movie together this evening. It has been a nice day. So that is it - I will see you Tuesday!
Our family will be participating in a Vision Walk in Boston, MA in October on behalf of Finley. If you would like to sponsor us in our walk, please click on the following:FINLEY'S FIGHTERS
We are a family of 5 living in Connecticut. Mat and I have been married for 11 1/2 years, and we have three children. Arlington is 6 1/2 years old, and Finley and Cainan are 3 years old. We adopted Cainan from China when he was 14 months old. He was born with cleft lip and palate level three. This blog started out as our journey to bring him into our family and has turned into our family blog. He and Finley are only 30 days apart!! We love being a blended family, and enjoy sharing about our trials and tribulations through becoming one! Also, our daughter Finley was recently diagnosed with Lebers Congenital Amaurosis (LCA) a rare genetic eye condition that has made her legally blind. Come and read about our proud family! If you want to read Cainan's story, click here: The Pletcher Five Journey Blessings Times Three: Cainan's Story